The Alzheimer’s Hub of Hope has four sections: Heroes, Highlights, Headlines and Helpers/Caregivers. This post is aligned to the helper/caregiver section.
My wife Ann has just come home from a residential care facility after over seven years in care. I visited daily and noted that few other residents had such frequent visits from family. I also noted that as those with Alzheimer's or similar conditions causing increasing disassociation with the world would receive fewer visits as the condition advanced. Sad to see, but at some level, understandable. However, as I remind our family, it's not about them and their feelings, it's about their loved one's needs. Ann is apparently unresponsive to people but is definitely affected positively by social interaction with noticeable, albeit small, improvements in her demeanour. Ann, being the first person to survive an end-stage Alzheimer's diagnosis (imminently terminal end-stage Alzheimer's prognosis late 2017) is on a different path to most. Another point, as a close in caregiver, is that I need the social contact as well, it can be a lonely battle!
Hi William, Ann was adjudged end stage in September 2017 and given 3-6 months to live in a formal prognosis for a successful terminal illness payout. I claim she was the first end stage Alzheimer's patient to survive the diagnosis but am happy to find others who came back from the brink. Dr Bredesen's teams are claiming to have turned over 6000 early stage Alzheimer's sufferers around since 2012. She was originally diagnosed with 'atypical early onset Alzheimer's' in 2012. It turns out her brain damage was incurred mainly by a bad reaction to household mould exposure but she also had a number of other contributing factors. When treated for the mould issues utilising the Shoemaker mould illness protocol, she responded in a few weeks and regained a lot of function, this progress lost to a rest home doctor refusing to chart her treatment. However, we managed to save her by essentially going to war with the Alzheimer's medical establishment. Unfortunately, she sustained brain damage as a result of the interference which may or may not be open to improvement when we have the resources to re-enter the mould treatment protocols. The story is told in detail up to 2020 in my book "Breakthrough, Surviving Alzheimer's And Why You Can Too", available on Amazon.
I had the same kind of diagnosis. Obviously, it was a bit premature.
Alzheimer’s is *caused* by Aluminum.
Bodily Aluminum can be removed by chelation.
IV chelation is effective but very expensive.
Oral chelation is also effective and affordable… a liter/quart of OSA water … like Fiji Water… will, over a few months, effectively chelate much of your bodily Aluminum metal.
Ask me howling know. 😇
But please hurry. Heading for Iceland and Greenland in a few weeks.
My wife Ann has just come home from a residential care facility after over seven years in care. I visited daily and noted that few other residents had such frequent visits from family. I also noted that as those with Alzheimer's or similar conditions causing increasing disassociation with the world would receive fewer visits as the condition advanced. Sad to see, but at some level, understandable. However, as I remind our family, it's not about them and their feelings, it's about their loved one's needs. Ann is apparently unresponsive to people but is definitely affected positively by social interaction with noticeable, albeit small, improvements in her demeanour. Ann, being the first person to survive an end-stage Alzheimer's diagnosis (imminently terminal end-stage Alzheimer's prognosis late 2017) is on a different path to most. Another point, as a close in caregiver, is that I need the social contact as well, it can be a lonely battle!
Hello Peter.
Darn! I thought that I was the first Alzheimer’s survivor!
I was diagnosed by both family MDs and Alzheimer’s specialists some 3+ years ago. Now testing High Normal.
I am delighted to have company!
But sorry that Ann still is afflicted!
Do you have any ideas as to what treatments or other actions might have been responsible for prolonging her life?
Hi William, Ann was adjudged end stage in September 2017 and given 3-6 months to live in a formal prognosis for a successful terminal illness payout. I claim she was the first end stage Alzheimer's patient to survive the diagnosis but am happy to find others who came back from the brink. Dr Bredesen's teams are claiming to have turned over 6000 early stage Alzheimer's sufferers around since 2012. She was originally diagnosed with 'atypical early onset Alzheimer's' in 2012. It turns out her brain damage was incurred mainly by a bad reaction to household mould exposure but she also had a number of other contributing factors. When treated for the mould issues utilising the Shoemaker mould illness protocol, she responded in a few weeks and regained a lot of function, this progress lost to a rest home doctor refusing to chart her treatment. However, we managed to save her by essentially going to war with the Alzheimer's medical establishment. Unfortunately, she sustained brain damage as a result of the interference which may or may not be open to improvement when we have the resources to re-enter the mould treatment protocols. The story is told in detail up to 2020 in my book "Breakthrough, Surviving Alzheimer's And Why You Can Too", available on Amazon.
Peter… Alzheimer’s is NOT a death sentence!
I had the same kind of diagnosis. Obviously, it was a bit premature.
Alzheimer’s is *caused* by Aluminum.
Bodily Aluminum can be removed by chelation.
IV chelation is effective but very expensive.
Oral chelation is also effective and affordable… a liter/quart of OSA water … like Fiji Water… will, over a few months, effectively chelate much of your bodily Aluminum metal.
Ask me howling know. 😇
But please hurry. Heading for Iceland and Greenland in a few weeks.
Peter… My trip to Iceland and Greenland has been delayed by a few weeks.
Have you begun the chelation process? Results?
Thanks for your insights. I agree that caregivers need support too.